Supporting FAIR data discoverability in clinical research: providing a global metadata repository (MDR) of clinical study object

Societal challenges

ECRIN is a non-profit organisation that links scientific partners and networks across Europe to facilitate multinational clinical research. The main goal of this use case is to deploy the ECRIN MetaData Repository (MDR) CORE database and metadata conversion tool in the European Open Science Cloud.

Technical challenges

The first objective of the proposed project is to extend the MDR demonstrator to run in production in the EOSC environment and be part of the EOSC catalogue and to complete the data base by integrating all major data sources dedicated to clinical research.

The second objective is to include others EOSC services not already included into MDR: we plan to include also EGI Fed Cloud Resources to host the distributed repositories.

How EOSC can help and add value

This use case was facilitated by the EOSC-hub project via the following services: EGI Cloud Compute, EGI Cloud Container Compute, EGI DataHub, EUDAT B2FIND

Specific steps:

– Setup of the EGI Data Hub service

– Investigate the metadata scheme and requirements for future harvesting with B2FIND

– Deploy the ECRIN Portal on the EGI Federated Cloud

– Enable harvesting of a single global metadata repository (MDR) instance with B2FIND

– Integration testing and enable harvesting of one or more MDR instance with B2FIND

The service presented is called MOBIS, developed by DDQ: Pocket Science , a small Dutch company specialised in the development of mobile-based (citizen-) science applications with research partners worldwide. Such solution aims at solving the problem of high fragmentation in the citizen science apps ecosystem offering an integration service